It's been a while since my last post. Since then, I have completed whole brain radiation (completed in September). I had a follow up scan in the beginning of November. The five tumors have significantly shrunk; my neurooncologist remarked this was a beautiful response. Good!
I started taking cannabis right after I was diagnosed. At first I took basically CBD oil, but was informed that I needed to consume THC to kill the cancer. So I changed my regimen, but I ended up puking for about a month. I'm still monkeying around with the CBD/THC ratio with the hopes that I can ramp up my cannabis dosage and cut out all the nausea and vomiting.
Most days I feel pretty good...if I'm not puking that is :) My head is pretty screwey sometimes too. The doctors gave me a shot and pills to turn off my ovaries (just in case the cancer is fed by hormones). I feel like I'm either hot or freezing all of the time. Of course that is not helped by the fact that I'm bald. The radiologist said I have a 50/50 chance of my hair coming back. Yay.
I will see my oncologist next month, and have a scan scheduled for the new year. Crossing fingers the tumors will be gone. And they stay gone (this is a primary challenge for triple negative brain mets). Fuck I wish this would just go away. Living in the shadow of this disease SUCKS!!!
All for now
Carrie
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